Its been too long since I last posted here. My journey has been slow but I do see a flicker of hope on the horizon. (I am remembering a dream I had years ago. I was in a very dark place. Once my eyes adjusted to the darkness I realized that I was in a long underground tunnel. There was a tiny light ahead of me and I was determined to reach it.)
Beginning in July, 2018 I will be documenting my recovery process beginning with my first Hyperbaric Oxygen Treatment (HBOT) chamber entry. I will also be reflective and outspoken about the issues of life that have formed and transformed me.
Today, I am 26.5 months post Traumatic Brain Injury (TBI). In the first year following my injury, I was active with the standard medical model treatments. Much of what I did had little resolve of the large number of symptoms I suffered. At the conclusion of the treatments that my work comp would allow, each of my providers could only offer me the standard and unacceptable , “You will have to learn to live with these limitations the rest of your life.”
What? Not me! I have fought each demon I faced in my life and I have triumphed. They came after me in my mother’s womb, then again at only a few weeks old. I suffered too many illnesses in my youth. I was sexually abused by my swim coach for years beginning at age 12. This led to other traumatic sexual, emotional and physical events and accidents that continued to threaten my life. NO MORE! I’m fighting my way out of this pit.
Today, I am free to locate and receive the advanced neurological, medical, and emotional assistance I so desperately need. Medicare allots an amount for a certain number of years to address the few medical treatments I previously received. I will most likely use it for eye care and dental care.
The expense will be enormous and I/we can only trust in our LORD to get us through the financial responsibilities I must make in order to get better and live out my years with success. There is no way that I will resolve to live the rest of my life with the disabling headaches, sleeplessness, instability, poor eye sight, severe biological and emotional symptoms I experience from movement ie vehicle rides or going up and down stairs, inability to express myself well and the emotional rollercoaster I ride daily.
MRI findings reveal that I have softening and scarring of my mid and left frontal lobe and left temporal lobe. A specialized EEG shows that every area of my brain was traumatized by my fall at work, my brain hz waves are below the acceptable margins which indicates that all of my symptoms are consistent with these results. I also have exaggerated hz sleep waves which explains why I have such difficulty getting to sleep and staying asleep. I do not want to imagine or even think about the continued damage/disabilities I will live with if I do not aggressively manage my future.
I have arranged my initial treatment with Dr. John Hughes @ http://www.tbitherapy.com in Basalt, CO. His office is 150 miles from our home. I will begin my treatment with a certain number of daily dives (20-80) in the HBOT chamber that we will purchase for home use. Then I will travel to his office for advanced treatments during week-long visits through the next few years. I am looking forward to the future.
Further assistance will be in Chicago, Illinois, Provo, Utah and in the Twin Cities, Minnesota.
Thank you for your kind prayers for me and D and for all of your most welcome words of love. I recently received this message from a dear friend and it still is soothing to my soul. “I love you, Suzanne. Hugs.”
Suzanne's LiveWell Blog 
Yes, you will beat this! Happy to hear the bext phase if the journey has begun!
Love,Steph
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